Exercise Tolerance Testing in ME/CFS:
This study aims to assess the impact of exercise on the microbiome, the metabolome, the proteome, and the epigenome. Study participants of both ME/CFS patients and healthy controls will undergo a supervised exercise tolerance test with questionnaire, blood, stool, and saliva collections before and after testing.
This study is actively recruiting Healthy Controls at the following sites:
- Stanford University (Stanford, CA): pre-screening online form for both ME/CFS Patients and Health Controls
The Lean Test:
This study aims to assess the clinical utility of the Lean Test as well as the impact of orthostatic stress on the metabolome and the epigenome. Study participants will complete a supervised Lean Test with a randomly selected subset of study participants providing blood samples before and after testing. Both ME/CFS patients and healthy controls will be needed to complete this study.
Recruitment of ME/CFS Patients and Healthy Controls will be held at the following sites:
- Bateman Horne Center (Salt Lake City, UT)
Clinical Trials (Domestic and International Opportunities)
The NIH U.S. National Library of Medicine updates their database with on-going clinical trials worldwide. You can sort by status of the trial, eligibility criteria, location, and topic.
The ME/CFS community has such strength in supporting each other as we navigate towards answers for this devastating disease. These are just a few of the patient forums available to find out more information on advocacy and learn about each other's journeys.
Have something to say? Need some more information? Here are some of the online places you can visit to read about what others are experiencing, share what you have encountered on your own path, or review some of the resources that may have some additional information.
CDC: America's Hidden Health Crisis: Hope for Those Who Suffer from ME/CFS
CDC: What is ME/CFS?
FDA: The Voice of the Patient. A series of reports from the FDA's Patient-Focused Drug Development Initiative for ME/CFS
HHS: Chronic Fatigue Syndrome Advisory Committee (CFSAC)
HHS Office on Women's Health: Chronic fatigue syndrome
MECFSnet: Website maintained by RTI with resources, news, and events
National Academies of Science: Beyond ME/CFS: Redefining an Illness (publication)
NIH: Trans-NIH ME/CFS Working Group
NIH Director's Blog: Moving Towards Answers in ME/CFS
NINDS: Common Data Elements (CDE)
RTI: RTI International
Ask Our Researchers Series