Terry McGovern founded the HIV Law Project in 1989 where she served as its executive director until 1999. Ms. McGovern successfully litigated numerous cases against the federal, state and local governments including S.P. v. Sullivan which forced the Social Security Administration to expand HIV-related disability criteria so that women and low income individuals can qualify for Medicaid and social security, and T.N. v. FDA, which eliminated a 1977 FDA guideline restricting the participation of women of childbearing potential in early phases of clinical trials. As a member of the National Task Force on the Development of HIV/AIDS Drugs, she authored the 2001 federal regulation authorizing the FDA to halt any clinical trial for a life threatening disease that excludes women. In 1999, she was awarded an Open Society Institute Fellowship and an appointment at the Mailman School. In 2001, she was named director of the Women's Health and Human Rights Advocacy Project, whose goal is to improve the reproductive and overall healthcare of low- income women, and work on issues related to fundamentalisms and the impact on women's human rights. Ms. McGovern has published extensively and testified numerous times before Congress and other policymaking entities. From 2006 until 2012, she was Senior Program Officer in the Gender, Rights and Equality Unit of the Ford Foundation. She oversaw global and domestic programming relating to HIV, gender, LGBT and Human Rights. Currently, Ms. McGovern serves as Harriet and Robert H. Heilbrunn Professor and Chair of the Heilbrunn Department of Population and Family Health and teaches Health and Human Rights and Environmental Justice.
Lancet Commission on Migration and Health, Commissioner, 2017-present
Lancet Commission on Adolescents, Commissioner, 2013-present
Board of Directors, CHANGE, 2013- present
UN Reference Group on Human Rights/HIV, 2010-present
9/11 United Services Group Family Advisory Committee, 2002-2004
Founder/Executive Director HIV Law Project, 1989-1999
Honors & Awards
American Bar Association Alexander M. Forger Award for Sustained Excellence in HIV Legal Services and Advocacy, 2012
World Positive Leadership Award, 2012
AIDS United Inaugural Leadership Award, 2011
amFAR Courage Award for Advocacy, 2005
New York State Bar Association's Public Interest Award, 1996
Areas of Expertise
Select Urban Health Activities
HIV Law Project: Prof. McGovern founded the HIV Law Project to provide civil legal representation to low-income HIV-positive persons. The Project offers legal services in the areas of housing, family law, immigration, financial benefits and discrimination. The project successfully challenged the Social Security's reliance on the restrictive CDC AIDS definition in S.P. v. Sullivan. The project also conducted large scale advocacy campaigns on behalf of women with HIV including challenging mandatory testing of women, The FDA's exclusion of women of childbearing potential from clinical trials and other policies that discriminated against low income HIV positive individuals.
Women's Health and Human Rights Initiative: Prof. McGovern works to broaden the understanding of the impact of fundamentalist violence and policies on women.
Select Global Activities
Lancet Commission on Migration and Health: Working to examine the legal and human rights context for issues surrounding migration and health globally.
Assessing the Impact of the Expanded Global Gag Rule: Working on documenting the impact of the expanded Global Gag Rule in multiple countries on the health and wellbeing of women and health providers.
Proposed Methodology for SDG Indicator 5.6.2: Examined possible methodologies to critically assess the progress of SDG indicator 5.6.2., which seeks to measure the number of countries with laws and regulations that guarantee women aged 15-49 access to sexual and reproductive healthcare, information, and action.
Patton, G.C., Sawyer, S.M., Santelli, J.S., Ross, D.A., Afi fi, R. , Allen, N.B., Arora, M., Azzopardi, P., Baldwin, W., Bonell, C., Kakuma, R., Kennedy, E., Mahon, J., McGovern, T., Mokdad, A.H., Patel, V., Petroni, S., Reavley, N., Taiwo, K., Waldfogel, J., Wickremarathne, D., Barroso, C., Bhutta, Z., Fatusi, A.O., Mattoo, A., Diers, J., Fang, J., Ferguson, J., Ssewamala, F., Viner, R.M. (2016). Our Future: A Lancet Commission on Adolescent Health and Wellbeing. Lancet, 387: 2423-2478.
Chesler, E., & McGovern, T., Eds. (2015). Women and Girls Rising: Rights, Progress and Resistance: a Global Anthology. Routledge University Press: Kentucky, USA.
McGovern, T. (2013). No risk, no gain: invest in women and girls by funding organizing, advocacy, litigation and work to shift culture, Reproductive Health Matters, 21(42):86-102.
McGovern, T. (2000). Gender Equity in HIV/AIDS Clinical Trials. In Mayer, K. & Pizer, H., eds. The Emergence of AIDS: The Impact on Immunology, Microbiology and Public Health, 99-116. Washington DC: American Public Health Association.
McGovern, T. (1997). Mandatory HIV Testing and Treating of Childbearing Women: An Unnatural, illegal, and unsound approach. Columbia Human Rights Law Review. 28(3): 469-299.